Researchers at UCLA Identify New Risk Genes for PSP
A team of researchers at the University of California, Los Angeles have identified a set of new risk genes for progressive supranuclear palsy and Alzheimer’s disease. Published in the journal...
View ArticleNIH Unveils Web Portal to Give Researchers Access to Stem Cell Lines for FTD
The National Institutes of Health’s Center for Alzheimer’s and Related Dementias (CARD) recently unveiled a new web portal to share stem cell lines used for the study of neurodegenerative conditions,...
View ArticleStudy Finds Similarities Between bvFTD and Schizophrenia
A study recently published in JAMA Psychiatry revisited a 120-year-old theory on “premature dementia” and has discovered similarities and some degree of overlap between schizophrenia and behavior...
View Article“Dementia Village” Care Facility Model Gives Residents More Freedom
A recent report by Vox featured a Dutch “dementia village” that gives residents a great deal of freedom in a carefully tailored, familiar-feeling setting. The Hogeweyk, located just outside Amsterdam...
View ArticleUCSF Study Investigates if Irregular Sleep in People with PSP Caused by...
A study by researchers at the University of California, San Francisco investigated if the loss of subcortical neurons contributes to the irregular sleep patterns that are frequently found in people...
View Article“Zoey’s Extraordinary Christmas” Creator Shares Personal PSP Experiences That...
Zoey’s Extraordinary Christmas creator Austin Winsberg discussed his personal experience with progressive supranuclear palsy (PSP) that inspired the holiday-themed revival of his show, Zoey’s...
View Article“Salt Path Couple” Share Story of Living with CBD and Hiking Through Nature
Raynor Winn, author of The Salt Path, shared with The Telegraph how she and her husband, Moth, embarked on a 630-mile hike through the UK after Moth was diagnosed with corticobasal degeneration (CBD)...
View ArticleRetired Australian Psychologist Shares How Tech Helps Her Manage FTD
Bobby Redman, a retired Australian psychologist diagnosed with frontotemporal dementia (FTD), shared with The Sydney Morning Herald how smart home appliances and other technology have helped her with...
View ArticleDementia Advocate Highlights Disproportionate Burden of Caregiving for Black...
Dementia advocate and thought leader Aisha Adkins wrote recently on the disproportionate burden that Black women face when caring for family members with FTD and other conditions. In the August 30...
View ArticleAustralian Man with Corticobasal Syndrome Hikes to Cape York
An Australian man with corticobasal syndrome (CBS) made it to Cape York, the northernmost tip of Australia, with the help of friends and his significant other. Matt Follows, like many with CBS,...
View ArticleClinical Trial Actively Recruiting for Test of FTD Diagnostic App
Researchers at the University College London Dementia Research Center are in the midst of a clinical trial evaluating a cognitive test for FTD that can be conducted through a mobile app. In the study...
View ArticleEditorial Emphasizes Benefits of Telehealth for People with Dementia
An editorial recently published in The Hill emphasized the benefits of telehealth care for people with FTD, Alzheimer’s disease, and other forms of dementia. Jason Karlawish, MD, a professor at the...
View ArticleAFTD Ambassador Highlights Difficulties in Getting an FTD Diagnosis
AFTD Ambassador Deb Scharper shared the difficulties that she faced trying to get an accurate FTD diagnosis for her husband in a story published by The Healthy. Scharper’s husband, Tommy, was an auto...
View ArticleAdvocate Talks About Experience with Isolation and FTD in the LGBTQIA+...
Dementia advocate Patrick Ettenes recently shared his experience with FTD with the Times of Malta, and underscored the need for better support for people with dementia in the LGBTQIA+ community....
View ArticleCare Partner Shares How Cultural Disconnect Makes Dementia Care Harder for...
A recent article in Northwest Asian Weekly highlights how a disconnection between care infrastructure and culture can make dementia care more difficult for the Asian American and Pacific Islander...
View ArticleAt International Dementia Conference, Panelists Call for More Funding and...
Panelists at the International Dementia Conference in Sydney called for increased funding and training to address the need for greater access to specialized dementia care. FTD care partner Lynne...
View ArticleFinding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community
An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when trying to find long-term care for FTD and other dementias. Care partner...
View ArticleKarate Black Belt Shares His Experiences with Motor Neuron Disease
A karate ace in the UK shared his experiences of wanting to help people and stay active after his motor neuron disease (MND) diagnosis. The first signs that Liam Blaney had that something was wrong...
View ArticleAFTD Ambassador Shares FTD Information, Experiences on Facebook Live
AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts Alzheimer’s Center to talk about FTD and share his firsthand experiences as a care partner for his...
View ArticleFDA Announcement on ALS Drug Reflects Growing Hope for Treatments
The FDA’s recent approval of a new drug to treat ALS signals important and promising developments for our community. In clinical trials, the drug, which will be marketed as Relyvrio (AMX0035), passed...
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