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Washington Times Article: Mystery brain disorder robs patients of their words

In an article from The Washington Times, primary progressive aphasia (PPA) is discussed and how it varies from Alzheimer’s Disease in that it doesn’t rob people of their memories, but rather the words...

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An Optimistic View of Life with FTD from a Person Diagnosed

Jan Ford, a person diagnosed with FTD, shares her journey to diagnoses, and life afterward in this honest and encouraging article titled, “FTD is Not the End of the World“.

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“DEMENTIA COSTS SOARING; GOVT UNFAZED”– an article from the Bangalore Mirror...

Experts say the burden of the cost of dementia has been seriously underestimated; studies pointed out the need for doctors, researchers and policymakers to catalyse geriatric health services in India....

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Supportive Care Study, Currently Enrolling

AFTD is pleased to share that the Memory and Aging Center of the University of California, San Francisco is launching a Supportive Care Study that also features a telephone and web-based care-model...

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When Dementia Unlocks Creativity

Recently featured in The Wall Street Journal, Victor, a man diagnosed with FTD, has discovered a creative side he never knew he had. In this interesting article, we learn that in some patients,...

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Laughter is the Best Medicine for Dad’s Dementia

Comedian David Baddiel reveals the black humor in his father’s FTD diagnosis through a stand-up comedy show he has created to help him cope. He explains, “The impulse behind wanting to do a show like...

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HBO Program Features Persons Diagnosed With FTD

On February 19th, 2016, HBO aired an episode within its Vice series, entitled “Right to Die.” As described on HBO’s website, the episode explored “moral, political and personal questions about when and...

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February 29th: 2016 Rare Disease Day

AFTD is pleased to announce its participation in Mediaplanet’s special print insert, Rare Diseases, an awareness campaign being published in USA Today’s New York, Chicago, Houston, San Francisco and...

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How My Son Helps Me Hold Onto My Mom as Dementia Steals Her Away

Author Catherine Savini shares how becoming a new mother has helped her to remember earlier times with her mother and the important advice she gave before being diagnosed with FTD, in this heartfelt...

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‘Brain Imaging Gets the Scoop on Eating Disorders in FTD’

As first reported online via JAMA Neurology, a new study “takes significant steps in studying the eating behaviors of FTD under carefully controlled conditions … [and is] one of the most comprehensive...

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‘Review: Tinsley’s “Double Distance” is emotional…’

Selected works from artist and AFTD volunteer Tori Tinsley’s Hugs series are currently being exhibited at the Ernest G. Welch School of Art and Design galleries, located at Georgia State University in...

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AFTD Speaks to Kimberly Williams-Paisley About Her New Book

Kimberly Williams-Paisley’s new memoir, published earlier this month by Penguin Random House, has much to offer for anyone impacted by FTD. In this vivid, thoughtful book, Williams-Paisley describes...

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AD-Related Dementias Summit 2016: Progress, Aims, Dollars

The April 2016 Alzheimer’s Disease-Related Dementias (ADRD) Summit gathered together approximately 400 researchers, representatives of government and nonprofit groups, patients and caregivers to...

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Minneapolis-based Children’s Author, Nancy Carlson to Give Keynote at AFTD...

On May 10th, AFTD announced they would hold their 2016 education conference in Minneapolis, MN, at the DoubleTree by Hilton Hotel Minneapolis-Park Place, on Friday, May 13. It will run from 9:30 a.m....

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The Lauder and Newhouse Foundations Announce New Initiative to Find...

AFTD is excited to share that The Lauder Foundation and the Samuel I. Newhouse Foundation have each committed $5 million to create The Treat FTD Fund, which will accelerate clinical trials for FTD over...

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Founding Member of The Beastie Boys, Passes Away From FTD

John Berry, an original member of hip-hop group the Beastie Boys, died Thursday morning, May 19th, at 7:30 a.m. at a hospice in Danvers, Massachusetts. He had been battling FTD, which had worsened in...

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How Activity Level May Help People Living With FTD

Featured on BBC Sport, the activity level of people battling dementia is explored. Specifically, the story of Malcolm Watt, a professional tennis player prior to being diagnosed with dementia aged 42,...

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Two Potamkin Prize Winners — On Finding the Gene for ALS and Frontotemporal...

In this article in Neurology Today, two scientists – Rosa Rademakers, PhD, and Bryan Traynor, MD, PhD – who started their careers studying very different diseases, ended up at the same genetic address...

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Longtime UNC Announcer, Woody Durham, has Been Diagnosed with PPA

Woody Durham, the longtime announcer for Tar Heel basketball and football games, recently shared with his fans that he has diagnosed with Primary Progressive Aphasia (PPA). “Last winter, I was...

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Partnerships Play a Key Role in the Battle Against Brain Diseases

In a recent article on Huffington Post, written by Dr. Howard Fillit, Chief Science Officer of the Alzheimer’s Drug Discovery Foundation (ADDF), the importance of partnerships are explained in how they...

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